麻豆传媒

I work as the Project Manager for the DMD Hub Central Recruitment Pilot Project.

The DMD Hub Central Recruitment Pilot Project is looking to create a national contact list of children and adults with Duchenne Muscular Dystrophy who are interested in participating in research studies.  Over the past 10 years, there has been an increased number of natural history studies and clinical trials taking place to better understand Duchenne Muscular Dystrophy. Due to the complexity of the disease and of setting up sites to conduct research studies, they often only take place at a limited number of sites across the UK.  This can create some challenges to clinicians, people diagnosed with Duchenne Muscular Dystrophy and their families.

The objective of the DMD Hub Central Recruitment Pilot Project is to identify if there is a benefit to people diagnosed with Duchenne Muscular Dystrophy and trial sites in maintaining a centrally coordinated national recruitment contact list of children and adults with Duchenne Muscular Dystrophy who are interested in participating in research studies in the UK.

The DMD Hub is a network of trial sites with trained staff which are funded to carry out clinical trials for Duchenne Muscular Dystrophy.  It uses existing UK clinical trial expertise, to provide a central resource offering advice, guidance and training to sites less experienced in running Duchenne Muscular Dystrophy clinical trials.  Ultimately, the mission of the DMD Hub is to ensure all people with Duchenne Muscular Dystrophy, both children and adults, have access to clinical research trials.